Question: Do you have any information on multiple system atrophy? Do you know of any studies or drug trials?
Dr. Hibberd's Answer:
Multiple system atrophy (MSA) is a progressive degenerative disorder that is general term of several conditions previously named as Shy-Drager syndrome, olivopontocerebellar atrophy, and striatonigral degeneration. Now, the more general term MSA is used as an overall description.
There is no cure for MSA and no current treatment that will delay the degenerative changes seen in the brain. Current treatment involves symptom support and relief only. This disease tends to advance rapidly over a period of nine to 10 years, with eventual confinement to bed and death. No remissions have been seen.
There is an active NIH supported MSA atrophy base of clinical trials available at the NIH and through the NINDS (National Institute of Neurological Disorders and Stroke), as well as through independent centers around the United States and Canada. These centers will accept patients on self-referral or on referral from your private physician. Enrollment is simple and available by Internet. I suggest you go to the National Institute of Neurological Disorders and select one of the three patient recruitment choices for enrollment given in the fifth paragraph. Many of these studies will also pay for all travel, accommodation, trial, and medication expenses in order for patients to participate.
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